HomeResources • Member's Publications

Interdisciplinary Members Publications

  • Ailey, S.H., Brown, P.J., Friese, T.R., & Dugan, S. (2016). Building a culture of inclusion: Disability as opportunity for growth and improving patient care. Journal of Nursing Administration, 46(1), 9-11.
  • Ailey, S.H., Lamb, K.V., Friese, T.R. & Christopher, B.A. (2015). Educating nursing students in leadership using a project for improving care for patients with intellectual and developmental disabilities. Nursing Management, 21(9), 23-28.
  • Ailey, S., Ticha, R., Abery, B., Bathje, M., & Moro, T. (2021). Environment scan on approaches to education of healthcare professionals in care of persons with intellectual and developmental disabilities. Paper presented at the Journal of Applied Research in Intellectual Disabilities, , 34(5) 1322-1323.
  • Bassell JL, Phan H, Leu R, Kronk R, Visootsak J. Sleep profiles in children with Down syndrome. Am J Med Genet A. 2015 Aug;167A(8):1830-5. doi: 10.1002/ajmg.a.37096. Epub 2015 Jun 23. PubMed PMID: 26105013; PubMed Central PMCID: PMC4515186.
  • Berry-Kravis E, Hessl D, Abbeduto L, Reiss AL, Beckel-Mitchener A, Urv TK. Outcome measures for clinical trials in fragile X syndrome. J Dev Behav Pediatr. 2013 Sep;34(7):508-22. doi: 10.1097/DBP.0b013e31829d1f20. PubMed PMID: 24042082; PubMed Central PMCID: PMC3784007.
  • Blaskowitz, M.G., Hernandez B., Scott, P.W. (2019) Predictors of Emergency Room and Hospital Utilization Among Adults With Intellectual and Developmental Disabilities (IDD) Intellect Dev Disabil; 57 (2): 127–145. https://doi.org/10.1352/1934-9556-57.2.127

  • Boyle, C. A., Fox, M. H., Havercamp, S. M., & Zubler, J. (2020). The public health response to the COVID-19 pandemic for people with disabilities. Disability and Health Journal; Disabil Health J, 13(3), 100943. https://doi.org/10.1016/j.dhjo.2020.100943
  • Chan TE, Lockhart JS, Schreiber JB, Kronk R. Determining nurse practitioner core competencies using a Delphi approach. J Am Assoc Nurse Pract. 2020 Mar;32(3):200-217. doi: 10.1097/JXX.0000000000000384. PubMed PMID: 32132457.
  • Clements KM, Zhang J, Long-Bellil LM, Mitra M. Emergency department utilization during the first year of life among infants born to women at risk of disability. Disabil Health J. 2019 Aug 01; 100831. PMID: 31431409.
    View in: PubMed
  • Cook RS, Gillespie GL, Kronk R, Daugherty MC, Moody SM, Allen LJ, Shebesta KB, Falcone RA Jr. Effect of an educational intervention on nursing staff knowledge, confidence, and practice in the care of children with mild traumatic brain injury. J Neurosci Nurs. 2013 Apr;45(2):108-18. doi: 10.1097/JNN.0b013e318282906e. PubMed PMID: 23422697.
  • Engelman, A; Ivey, S; Tseng, W; Dahrouge, D; Brune, J; Neuhauser, L. (2013) "Responding to the Deaf in Disasters: Establishing the Need for Systematic Training for State-Level Emergency Management Agencies and Community Organizations.” BMC Health Services Research. 13:84
  • Engelman, A., Paludneviciene, R., Wagner, K., Jacobs, K., & Kushalnagar, P. (2021). Food Worry in the Deaf and Hard-of-Hearing Population During the COVID-19 Pandemic. Public Health Reports.
  • Engelman, A., Valderama-Wallace, C., Nouredini, S. “State of the Profession: The Landscape of Disability Justice, Health Inequities and Access for Patients with Disabilities.” Journal of Advances in Nursing Science. 42(3) July/September 2019
  • Ervin, D. A., Hennen, B., Merrick, J., & Morad, M. (2014). Healthcare for persons with intellectual and developmental disability in the community. Frontiers in public health, 2.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4098023/
  • Griffin, A.K. & Havercamp, S.M. (2020). Actions to Prepare a Competent Workforce. In D.J. Lollar, K. Froehlich-Grobe, and W. Horner-Johnson (Eds.). Public Health Perspectives on Disability- Science, Social Justice, Ethics, and Beyond (2nd ed). Springer Nature, New York. https://www.springer.com/us/book/9781071608876 
  • Hagerman RJ, Berry-Kravis E, Kaufmann WE, Ono MY, Tartaglia N, Lachiewicz A, Kronk R, Delahunty C, Hessl D, Visootsak J, Picker J, Gane L, Tranfaglia M. Advances in the treatment of fragile X syndrome. Pediatrics. 2009 Jan;123(1):378-90. doi: 10.1542/peds.2008-0317. Review. PubMed PMID: 19117905; PubMed Central PMCID: PMC2888470.
  • Havercamp, S. M. (2021). Competency-based curriculum development: Essential disability competencies for medical education. Academic Medicine; Acad Med, 96(2), 168-169. https://doi.org/10.1097/ACM.0000000000003825
  • Havercamp, S. M., Barnhart, W. R., Robinson, A. C., & Whalen Smith, C. N. (2021). What should we teach about disability? National consensus on disability competencies for health care education. Disability and Health Journal, 14(2), 100989. https://doi.org/https://doi.org/10.1016/j.dhjo.2020.100989
  • Havercamp, S. M., Krahn, G. L., Larson, S. A., Fujiura, G., Goode, T. D., & Kornblau, B. L. (2019). Identifying people with intellectual and developmental disabilities in national population surveys. Intellectual and Developmental Disabilities; Intellect Dev Disabil, 57(5), 376-389. https://doi.org/10.1352/1934-9556-57.5.376
  • Henry AD, Long-Bellil L, Zhang J, Himmelstein J. Unmet need for disability-related health care services and employment status among adults with disabilities in the Massachusetts Medicaid program. Disabil Health J. 2011 Oct; 4(4):209-18. PMID: 22014668.
    View in: PubMed
  • Johnson CR, Turner KS, Foldes E, Brooks MM, Kronk R, Wiggs L. Behavioral parent training to address sleep disturbances in young children with autism spectrum disorder: a pilot trial. Sleep Med. 2013 Oct;14(10):995-1004. doi: 10.1016/j.sleep.2013.05.013. Epub 2013 Aug 27. PubMed PMID: 23993773; PubMed Central PMCID: PMC3775974.
  • Karl R,  McGuigan D, Withiam-Leitch ML, Akl EA, Symons AB.  Reflective impressions of a precepted clinical experience caring for people with disabilities. Intellectual and Developmental Disabilities. 2013; 51(4).
  • Kronk R, Bishop EE, Raspa M, Bickel JO, Mandel DA, Bailey DB Jr. Prevalence, nature, and correlates of sleep problems among children with fragile X syndrome based on a large scale parent survey. Sleep. 2010 May;33(5):679-87. doi: 10.1093/sleep/33.5.679. PubMed PMID: 20469810; PubMed Central PMCID: PMC2864883.
  • Kronk R, Colbert AM, Smeltzer SC, Blunt E. Development of Prelicensure Nursing Competencies in Caring for People With Disabilities Through Delphi Methodology. Nurse Educ. 2020 May/Jun;45(3):E21-E25. doi: 10.1097/NNE.0000000000000712. PubMed PMID: 31219959.
  • Kronk R, Dahl R, Noll R. Caregiver reports of sleep problems on a convenience sample of children with fragile X syndrome. Am J Intellect Dev Disabil. 2009 Nov;114(6):383-92. doi: 10.1352/1944-7588-114.6.383. PubMed PMID: 19792059
  • Kronk RA, Ogonowski JA, Rice CN, Feldman HM. Reliability in assigning ICF codes to children with special health care needs using a developmentally structured interview. Disabil Rehabil. 2005 Sep 2;27(17):977-83. doi: 10.1080/09638280500052849. PubMed PMID: 16096251.
  • Lam WY, Gunukula SK, McGuigan D, Isaiah N, Symons AB, Akl EA. Validated instruments used to measure attitudes of healthcare students and professionals towards patients with physical disability: A systematic review. J Neuroeng Rehabil., 2010; 7
  • Leser, K. A., Pirie, P. L., Ferketich, A. K., Havercamp, S. M., & Wewers, M. E. (2018). The perceived role of direct support professionals in the health promotion efforts of adults with developmental disabilities receiving support services. Intellectual and Developmental Disabilities; Intellect Dev Disabil, 56(1), 40-55. https://doi.org/10.1352/1934-9556-56.1.40
  • Iezzoni LI, Long-Bellil LM. Training physicians about caring for persons with disabilities: "Nothing about us without us!". Disabil Health J. 2012 Jul; 5(3):136-9. PMID: 22726853.
    View in: PubMed
  • Long-Bellil L, Mitra M, Iezzoni LI, Smeltzer SC, Smith L. The Impact of Physical Disability on Pregnancy and Childbirth. J Womens Health (Larchmt). 2017 Jun 29. PMID: 28661774.
    View in: PubMed
  • Long-Bellil L, Mitra M, Iezzoni LI, Smeltzer SC, Smith LD. Experiences and unmet needs of women with physical disabilities for pain relief during labor and delivery. Disabil Health J. 2017 Apr 06. PMID: 28428112.
    View in: PubMed
  • Long-Bellil LM, O'Connor DM, Robey KL, Hahn JE, Minihan PM, Graham CL, Smeltzer SC. Commentary: defining disability in health care education. Acad Med. 2011 Sep; 86(9):1066-8. PMID: 21865901.
    View in: PubMed
  • Long-Bellil, L. M., O’Connor, D. M., Robey, K. L., Hahn, J. E. et al. on behalf of the Alliance for Disability in Health Care Education (2011). Commentary: Defining disability in health care education. Academic Medicine, 86, 1066-1068. doi: 10.1097/ACM.0b013e318226b359
  • Long-Bellil LM, Robey KL, Graham CL, Minihan PM, Smeltzer SC, Kahn P. Teaching medical students about disability: the use of standardized patients. Acad Med. 2011 Sep; 86(9):1163-70. PMID: 21785304.
  • Minihan PM, Robey KL, Long-Bellil LM, Graham CL, Hahn JE, Woodard L, Eddey GE. Desired educational outcomes of disability-related training for the generalist physician: knowledge, attitudes, and skills. Acad Med. 2011 Sep; 86(9):1171-8. PMID: 21785313.
    View in: PubMed
  • Minihan, P. M., Robey, K. L., Long-Bellil, L. M., Graham, C. L., Hahn, J. E.  et al. – on behalf of the Alliance for Disability in Health Care Education (2011). Outcomes of disability-related training to the generalist physician: an exploration of the contributions of knowledge, attitudes and skills. [An empirical review]. Academic Medicine, 86, 1171-1178. doi: 10.1097/ACM.0b013e3182264a25 
  • Mitra M, Akobirshoev I, Moring NS, Long-Bellil L, Smeltzer SC, Smith LD, Iezzoni LI. Access to and Satisfaction with Prenatal Care Among Pregnant Women with Physical Disabilities: Findings from a National Survey. J Womens Health (Larchmt). 2017 12; 26(12):1356-1363. PMID: 28832265.
    View in: PubMed
  • Mitra M, Bogen K, Long-Bellil LM, Heaphy D. Unmet needs for home and community-based services among persons with disabilities in Massachusetts. Disabil Health J. 2011 Oct; 4(4):219-28. PMID: 22014669.
    View in: PubMed
  • Mitra M, Clements KM, Zhang J, Iezzoni LI, Smeltzer SC, Long-Bellil LM. Maternal Characteristics, Pregnancy Complications, and Adverse Birth Outcomes Among Women With Disabilities. Med Care. 2015 Dec; 53(12):1027-32. PMID: 26492209.
    View in: PubMed
  • Mitra M, Iezzoni LI, Zhang J, Long-Bellil LM, Smeltzer SC, Barton BA. Prevalence and risk factors for postpartum depression symptoms among women with disabilities. Matern Child Health J. 2015 Feb; 19(2):362-72. PMID: 24889114.
    View in: PubMed
  • Mitra M, Long-Bellil LM, Iezzoni LI, Smeltzer SC, Smith LD. Pregnancy among women with physical disabilities: Unmet needs and recommendations on navigating pregnancy. Disabil Health J. 2016 Jul; 9(3):457-63. PMID: 26847669.
    View in: PubMed
  • Mitra M, Long-Bellil LM, Smeltzer SC, Iezzoni LI. A perinatal health framework for women with physical disabilities. Disabil Health J. 2015 Oct; 8(4):499-506. PMID: 26189010.
    View in: PubMed
  • Morley, J. E., Patel, A., VanPuymbrouck, L. H., Schwartz, C., Barney, K. F. (2015). Physiological and neurological system changes and common physical disorders associated with aging. In K. F. Barney, & M. A. Perkinson (Eds.), Occupational therapy with aging adults: Enhancing quality of life through collaborative practice (pp. 125–141). St. Louis, MO: Elsevier.
  • Navas, P., Llorente, S., García, L., Tassé, M.,J., & Havercamp, S. M. (2019). Improving healthcare access for older adults with intellectual disability: What are the needs? Journal of Applied Research in Intellectual Disabilities; J Appl Res Intellect Disabil, 32(6), 1453-1464. https://doi.org/10.1111/jar.12639
  • Ogonowski J, Kronk R, Rice C, Feldman H. Inter-rater reliability in assigning ICF codes to children with disabilities. Disabil Rehabil. 2004 Mar 18;26(6):353-61. doi: 10.1080/09638280410001658658. PubMed PMID: 15204487.
  • Powell RM, Mitra M, Smeltzer SC, Long-Bellil LM, Smith LD, Rosenthal E, Iezzoni LI. Breastfeeding Among Women With Physical Disabilities in the United States. J Hum Lact. 2018 May; 34(2):253-261. PMID: 29166569.
    View in: PubMed
  • Powell RM, Mitra M, Smeltzer SC, Long-Bellil LM, Smith LD, Rosenthal E, Iezzoni LI. Adaptive parenting strategies used by mothers with physical disabilities caring for infants and toddlers. Health Soc Care Community. 2018 Dec 16. PMID: 30556199.
    View in: PubMed
  • Powell RM, Mitra M, Smeltzer SC, Long-Bellil LM, Smith LD, Iezzoni LI. Family Attitudes and Reactions toward Pregnancy among Women with Physical Disabilities. Womens Health Issues. 2017 Feb 16. PMID: 28215842.
    View in: PubMed
  • Prokup, J. A., Andridge, R., Havercamp, S. M., & Yang, E. A. (2019). Healthcare disparities between children with developmental disabilities and typically developing children in Ohio. Child Indicators Research, 12(2), 667-687. https://doi.org/10.1007/s12187-018-9546-3
  • Robey KL, Minihan PM, Long-Bellil LM, Hahn JE, Reiss JG, Eddey GE. Teaching health care students about disability within a cultural competency context. Disabil Health J. 2013 Oct; 6(4):271-9. PMID: 24060249.
    View in: PubMed
  • Satchidanand N, Gunukula SK, Lam WY, McGuigan D, New I, Symons AB, Withiam-Leitch M, Akl EA. Attitudes of healthcare students and professionals toward patients with physical disability: A systematic review. Am J Phys Med Rehabil., 2012; 91(6)
  • Smeltzer, S.C. & Ailey, S.H. Sigma Endorses Core Competencies on Disability for Health Care Education. Reflections on Nursing Leadership
  • Smeltzer SC, Mitra M, Iezzoni LI, Long-Bellil L, Smith LD. Perinatal experiences of women with physical disabilities and their recommendations for clinicians. J Obstet Gynecol Neonatal Nurs. 2016;45:781–789. doi: 10.1016/j.jogn.2016.07.007. [PMC free article] [PubMed] [CrossRef] [Google Scholar]
  • Smeltzer SC, Mitra M, Long-Bellil L, Iezzoni LI, Smith LD. Obstetric clinicians' experiences and educational preparation for caring for pregnant women with physical disabilities: A qualitative study. Disabil Health J. 2018 Jan; 11(1):8-13. PMID: 28784583.
    View in: PubMed
  • Smeltzer SC, Mitra M, Iezzoni LI, Long-Bellil L, Smith LD. Perinatal Experiences of Women With Physical Disabilities and Their Recommendations for Clinicians. J Obstet Gynecol Neonatal Nurs. 2016 Nov - Dec; 45(6):781-789. PMID: 27619410.
    View in: PubMed
  • Symons AB, Fish RM, McGuigan D, Fox J, Akl EA.  Development of an instrument to measure medical students’ attitudes toward people with disability.  Intellectual and Developmental Disabilities, 2012; 30(3)
  • Tyler,Carl V.,,Jr, & McDermott, M. (2021). Transitioning patients with developmental disabilities to adult care: The pre-visit questionnaire, instructive videos, and web resources detailed here can help you play a pivotal role in planning, commencing, and solidifying this transition. The Journal of Family Practice, 70(6), 280. https://doi.org/10.12788/jfp.0232

    About the association

    The Alliance for Disability in Health Care Education, Inc. (ADHCE), is a “501 (c) (3) Public Charity”  organization of healthcare educators and professionals who are working to integrate disability-related content and experiences into healthcare education and training programs.

    Copyright ©2023 Alliance for Disability in Health Care Education.


    General Inquiries:  Rebecca Kronk
    Membership Dues / Donations:  Andrew Symons

    Powered by Wild Apricot Membership Software