Teaching and Learning Resources
Interprofessional Education
ADHCE Core Competencies on Disability for Health Care Education
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The Ohio State University Nisonger Center & Alliance for DIsability Health Care Education utilized the Delphi Method to gain consensus from a broad, diverse and inclusive group to create the Core Competencies on DIsabilities Standards to guide education on disabilities.
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On July 14, 2021, The National Council on Disabilities wrote a letter to Accreditation Council on Graduate Medical Education (ACGME), urging "ACGME to require all of its accredited residency and fellowship programs adopt and implement disability cultural competency training to ensure that physicians are prepared to meet the health needs of people with disabilities. We recommend that such training incorporate the Core Competencies on Disability for Health Care Education drafted by the Alliance for Disability in Health Care Education. Those core competencies present standards on social, environmental, and physical aspects of disability to inform future health professionals on how to provide effective, interprofessional team-based health care. Moreover, it is imperative that people with disabilities are involved in the development of that training."
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The following is from Chapter 16 Preparing a Disability-Competent Workforce, authored by Adriane Griffen and Susan Havercamp:
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“ The Core Competencies on Disability for Health Care Education establish the baseline expertise required to provide quality health care to patients with disabilities. The intent of these Health Care Education Competencies is to provide broad disability standards to guide healthcare education. The Alliance for Disability in Health Care Education, a nonprofit group comprised of interprofessional health educators, developed these competencies to increase healthcare providers understanding in order to provide quality health care to patients with disabilities. These Health Care Education Competencies were designed to apply to people with all types of disabilities (e.g., mobility disabilities, developmental disabilities, mental health disabilities) and to future healthcare providers across disciplines (e.g., medicine, nursing, social work, nutrition, speech, and hearing). The Alliance partnered with Ohio Disability and Health Program at the Ohio State University Nisonger Center to solicit feedback and refine the Health Care Education Competencies with input from a broad group of disability stakeholders. A consensus on the core Health Care Education Competencies was achieved through an iterative structured feedback process that included people with disabilities, family members, disability and health experts, health educators, and health care providers. An overwhelming majority (91%) shared that the Health Care Education Competencies were relevant to education across health disciplines (91%). The Disability Competencies for Health Care Education are available at:
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https://del.cms.gov/DELWeb/pubSearch
To search for rehabilitation setting items used nationally you need to “check” which healthcare setting you want displayed and further filtering possible by selecting a section within a chosen assessment (e.g. Functional Status Section GG) this will display other detailed choices from which to sort these assessment items
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The Center for Dignity in Healthcare for People with Disabilities TOOLKIT (funded by the Administration for Community Living) is an interdisciplinary coalition of stakeholders, including medical providers, researchers, ethicists, individuals with disabilities, and their family members. The Center’s goal is to identify and reduce life-limiting healthcare inequities faced by people with intellectual and developmental (ID/DD) disabilities.
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Communication-friendly Health Care Strategies- Six helpful strategies you can use in your day-to-day conversations in this five-minute Communication Access video. (Alberta Health Services – Canadian Organization)
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Disability Equity Collaborative (DEC) “supports individuals, healthcare organizations, policy makers, advocates, researchers, and professional organizations working to address the health disparities experienced by patients with all types of disabilities.”
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Georgetown University University Centers for Excellence in Developmental Disabilities, Education, Research and Service (UCEDD).
Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs provide long-term, graduate level interdisciplinary training as well as interdisciplinary services and care. The purpose of the LEND training program is to improve the health of infants, children, and adolescents with disabilities. They accomplish this by preparing trainees from diverse professional disciplines to assume leadership roles in their respective fields and by ensuring high levels of interdisciplinary clinical competence.
LEND programs operate within a university system, usually as part of a University Center for Excellence (UCEDD) or other larger entity, and collaborate with local university hospitals and/or health care centers. This set-up gives them the expert faculty, facilities, and other resources necessary to provide exceptional interdisciplinary training and services.
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MEDICARE ELIGIBILITY FOR PEOPLE WITH DISABILITIES
Compare your Medicare options as a person with a disability.
Disability healthcare resources and information
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Moving Healthcare Upstream
Navigating the Health Care System "is a four-unit health literacy curriculum designed by Nemours Children’s Health for use with young adults. It is designed to prepare high school and college-age teens to be responsible for managing their own health care as they transition into adulthood. Materials are suitable for in-class, in-home, after-school, and community settings, and can be taught virtually.”
Myth Busting Health Professions and Interprofessional Education at the Crossroads
Barbara Fifield Brandt, Founding Director
“The Patient Provider Communication Network is a national and international effort to promote information sharing, cooperation and collaboration among individuals who are committed to seeking improvements in patient-provider communication across the entire health care continuum--from a doctor's office, emergency room, clinic, ICU, acute care and rehabilitation hospital, home health service and hospice. We also address preparing individuals with communication challenges for future medical encounters. Patient Communication Access”
Resources for Integrated Care
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An Integrated Model for Disability Competent Care (RIC): Toolkit for providing disability competent care for eligible Medicare/Medicaid patients
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MEDICARE ELIGIBILITY FOR PEOPLE WITH DISABILITIES
Compare your Medicare options as a person with a disability.
Disability healthcare resources and information
ASSESSMENTS - A go-to resource for benchmarks and outcomes, with more than 500 measures supported by some of the world's best doctors, clinicians, therapists, and physical medicine and rehabilitation researchers
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The Center for Dignity in Healthcare for People with Disabilities (funded by the ACL Administration for Community Living) is an interdisciplinary coalition of stakeholders, including medical providers, researchers, ethicists, individuals with disabilities, and their family members. The Center’s goal is to identify and reduce life-limiting healthcare inequities faced by people with intellectual and developmental (ID/DD) disabilities.
Discipline-Specific
Dentists
Medicine - Healthcare
- American Academy of Developmental Medicine & Dentistry (AADMD) is a non-profit, membership organization of interdisciplinary health professionals, including primary physicians, medical specialists, dentists, optometrists, nurses and other clinicians, committed to improving the quality of healthcare for people with intellectual & developmental disabilities (IDD). - National Curriculum Initiative in Developmental Medicine (NCIDM)
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University of MI Medical School - “Working With People With Disabilities: An Interactive Video/Lecture Session for First-and Second-Year Medical Students,”
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University of Michigan Medicine
Center for Disability Health and Wellness - Webinars & conferences
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Univ of MI - IDEAL RRTC Webinar Series: Reimagining Primary Health Care for Individuals with Disabilities IDEAL RRTC’s goal is to promote the healthy aging of adults with long-term physical impairments and disabilities. This will be achieved by identifying factors at the intersection of the person and environment that impede or support positive health and function outcomes and creating solutions that improve the fit between the two.
Nursing
Occupational Therapists
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American Occupational Therapy Association (AOTA) Disability Curriculum Resources
Physical Medicine and Rehabilitation Physicians
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Learning for Improved Outcomes: The Academy is the not-for-profit educational arm of the Shirley Ryan AbilityLab. Many accredited online and in-person courses, webinars, and hands-on programs addressing the goal of improving patient outcomes.
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The Henry B. Betts LIFE Center - “multimedia education center providing opportunities for Learning, Innovation, Family and Empowerment for people living with a wide range of cognitive and physical impairments, chronic condition s or diseases
Physical Therapists
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Cultural Competence Resources: Individuals With Disabilities
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Endorsement Of International Classification Of Functioning, Disability And Health
Social Work
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CSWE Council on Social Work Education - Council on Disability and Persons With Disabilities (excellent and extensive resource as is the one below)
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Curriculum resources for SW Edu that is organized by SW Core Competencies - CSWE Disability Educational Resource Database
Speech and Language Pathologists
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American Society of Speech and Hearing Association (ASHA) Disability Curriculum Resources (excellent and extensive resource)
Disability Specific Organizations
Healthcare Professionals with Disabilities - Accessibility
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Society for Healthcare Professionals with Disabilities https://www.disabilitysociety.org/
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National Organization of Nurses with Disabilities https://nond.org/
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Docs with Disabilities Podcast https://medicine.umich.edu/dept/family-medicine/programs/mdisability/transforming-medical-education/docs-disabilities-podcast
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The Coalition for Disability Access in Health Science Education https://www.hsmcoalition.org/
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Association on Higher Education and Disability https://www.ahead.org/home
Autism
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AASPIRE (Academic Autism Spectrum Partnership in research and Education) Academic Autism Spectrum Partnership in Research and Education – Academic Autism Spectrum Partnership in Research and Education (aaspire.org)
Dementia
Intellectual & Developmental Disabilities
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American Academy for Cerebral Palsy and Developmental Medicine - Aims to provide multidisciplinary scientific education for health professionals and promote excellence in research and services for the benefit of people with and at risk for cerebral palsy and other childhood-onset disabilities.
Stroke
Many resources listed in this link, including national organizations
Traumatic Brain Injury
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Vision Impairment
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MyVision, a free digital resource led by expert ophthalmologists and optometrists to provide trusted information on eye health and vision. Many students with visual impairments can struggle to secure necessary academic help, which can lead to reduced language skills and emotional development. It's so important for students and families to know their options, so we compiled resources for students, with information on assistive technologies, managing the public school system and how parents can help.
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Disability Advocacy and Activism
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Disability Lead - Disability Lead increases civic engagement and diverse leadership in the Chicago region by developing and building a network of leaders with disabilities.
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Going to the doctor - Tips for Self Advocacy https://vkc.vumc.org/assets/files/tipsheets/goingdrtips.pdf
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In a Different Key - film/book on Autism lived experience
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Project DOCC - Delivery of Chronic Care is the pediatric residency training curriculum -Self-Advocates (IDD), family members, U Maine staff and medical providers are in our initial stages of learning what are the lessons people with disabilities want professionals to know, and what are the most effective ways to teach providers-in-training so that their future practice includes these lessons.
LEARN HOW WOMEN AND ARTISTS WITH DISABILITIES ARE CHANGING HEALTHCARE! Highlighted by the remarkable talent of artists with disabilities, we are showcasing powerful women with limited mobility who are unstoppable in their lives; however, do experience stops in accessing basic healthcare. Our vision is for all to be ABLE to obtain equal and accessible healthcare.
