Disability Grant-Funded Projects

ACL awarded Grant: Partnering to Transform Health Outcomes with Persons with Intellectual Disabilities and Developmental Disabilities (PATH-PWIDD) program. Purpose: Strengthen Healthcare Workforce and Address Health Disparities among People with Intellectual and Developmental Disabilities. The core partners are:

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  • University of Illinois at Chicago, HealthMattersTM Program (PIs – Beth Marks, PhD, RN, FAAN and Jasmina Sisirak, PhD, MPH);

The PATH-PWIDD project is guided by the Collective Impact Model for social change. A national, cross-sector consortium of advocates, healthcare providers, community-based workers, leaders in health care workforce education, policy experts, and academics comprise 3 PATH-PWIDD Consortium Action Networks (CANs). The CANs advise on the following areas for the PATH-PWIDD grant: 1) Measurement, Evaluation, and Outcomes, 2) Communication, and 3) Education, Practice, and Policy.

 

Below are presentations from CAN members on interprofessional education and training of healthcare workers in caring for persons with intellectual and developmental disabilities. (See links below for recorded presentations).

Latest resources from the PATH-PWIDD grant 2022

 


Jan. 2022 - Education, Practice, & Policy CAN featured a presentation from Allison P. Edwards, DrPH, MS, RN, CNE of the Cizik School of Nursing at University of Texas Health Science Center at Houston on Imperative Undergraduate IPE education: Nursing Care for People with Disabilities.    
 
At the most recent Measurement, Evaluation, & Outcomes CAN meeting, Magnus Sandberg and Anna Axmon from Lund University in Sweden presented on outcome measurement of two longitudinal studies of individuals with intellectual and developmental disabilities.

The Golisano Institute for Developmental Disability Nursing at St. John Fisher College has been awarded a $225,000 grant from the Mother Cabrini Health Foundation to create and pilot a new educational program with a focus on enhancing the knowledge, skills, and competencies of acute care nurses working with individuals with intellectual and developmental disabilities (IDD). ADHCE.org president, Dr. Sarah Ailey, a professor in the Department of Community, Systems, and Mental Health Nursing at Rush University in Chicago, Illinois, will serve as a consultant on the grant.

NIH (NICHD) awarded a fellowship grant titled "Individual Motor Outcome Prediction in Preterm Children Using Neonatal Neuroimaging" to Peppar Cyr, MPhil at Washington University in St. Louis School of Medicine. In addition to the research project, this fellowship includes training in disability advocacy and curriculum development.