Disability Grant-Funded Projects

ACL awarded Grant: Partnering to Transform Health Outcomes with Persons with Intellectual Disabilities and Developmental Disabilities (PATH-PWIDD) program. Purpose: Strengthen Healthcare Workforce and Address Health Disparities among People with Intellectual and Developmental Disabilities. The core partners are:

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• Rush University, College of Nursing (PI Sarah Ailey, PhD, RN, PHNA-BC, CNE, CDDN),

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• St. John Fisher College, Golisano Institute for Developmental Disability Nursing (PI – Dianne Cooney-Miner, PhD, RN,CNS, FAAN);

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• University of Illinois at Chicago, HealthMattersTM Program (PIs – Beth Marks, PhD, RN, FAAN and Jasmina Sisirak, PhD, MPH);

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• University of Minnesota, Institute on Community Integration (PIs – Brian Abery, PhD and Renáta Tichá, PhD); and,

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• Villanova University, M. Louise Fitzpatrick College of Nursing (PI – Suzanne Smeltzer, EdD, RN, ANEF, FAAN).

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The PATH-PWIDD project is guided by the Collective Impact Model for social change. A national, cross-sector consortium of advocates, healthcare providers, community-based workers, leaders in health care workforce education, policy experts, and academics comprise 3 PATH-PWIDD Consortium Action Networks (CANs). The CANs advise on the following areas for the PATH-PWIDD grant: 1) Measurement, Evaluation, and Outcomes, 2) Communication, and 3) Education, Practice, and Policy.

 

Below are presentations from CAN members on interprofessional education and training of healthcare workers in caring for persons with intellectual and developmental disabilities. (See links below for recorded presentations).

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Latest resources from the PATH-PWIDD grant 2022

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• Paula Consolini, Ph.D. and Isabel Arvelo (class of 2023) presented on experiential learning, community engagement, and team-based work at the Center for Learning in Action (CLiA) at Williams College.

  • Link to video: https://youtu.be/IWL3rMwQQG0

  • Link to power point: https://path-pwidd.org/s/March-2022-CLiA-PP-Zoom-Presentation.pdf

• Tyler Reimschisel, MD, MHPE and founding associate provost at Case Western Reserve University, presented an overview of the Interprofessional Education and Collaborative Practice Activities at CWRU.

  • Link to video: https://youtu.be/vuSRpsXBK5U

  • Link to power point: https://path-pwidd.org/s/PATH_PWIDD-Presentation.pdf

• Renata Ticha, Ph.D., a PATH-PWIDD Core Partner and member of the Steering Committee, presented the results of a literature review on the state of health care education and what has been accomplished since 1990 to address the health needs of individuals with IDD.

  • Link to video: https://youtu.be/mzADvaqOQto

  • Link to power point: https://path-pwidd.org/s/LiteratureReview.pdf

• Dr. Jennifer Mendez presented on the Interprofessional Team Visit Program at Wayne State University School of Medicine, in a presentation titled, “Utilizing an Interprofessional Value Scale to Optimize Team Assessment

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• Kim Bullock, MD, Director, Department of Family Medicine Community Health Division (CHD) and two of her student leaders, John DiBello and Meghan Chin, presented an overview of Community-Based Learning at Georgetown University School of Medicine and integrating its principles into student-focused, community-based participatory research (CBPR), including collaboration with the IDD community in DC.

 

• Dr. Blase Brown presented on Interprofessional Education at the University of Illinois at Chicago School of Dentistry.  and power point

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• Janice Odiaga, DNP, CPNP-PC and her team from the Office of Interprofessional Education at Rush University presented on their Interprofessional Patient Centered Teams curriculum and evaluation tools.

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  Available on PATH-PWIDD websiteMore presentations from our Consortium Action Network (CAN) meetings 

Jan. 2022 - Education, Practice, & Policy CAN featured a presentation from Allison P. Edwards, DrPH, MS, RN, CNE of the Cizik School of Nursing at University of Texas Health Science Center at Houston on Imperative Undergraduate IPE education: Nursing Care for People with Disabilities.    
 
At the most recent Measurement, Evaluation, & Outcomes CAN meeting, Magnus Sandberg and Anna Axmon from Lund University in Sweden presented on outcome measurement of two longitudinal studies of individuals with intellectual and developmental disabilities.

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The Golisano Institute for Developmental Disability Nursing at St. John Fisher College has been awarded a $225,000 grant from the Mother Cabrini Health Foundation to create and pilot a new educational program with a focus on enhancing the knowledge, skills, and competencies of acute care nurses working with individuals with intellectual and developmental disabilities (IDD). ADHCE.org president, Dr. Sarah Ailey, a professor in the Department of Community, Systems, and Mental Health Nursing at Rush University in Chicago, Illinois, will serve as a consultant on the grant.

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NIH (NICHD) awarded a fellowship grant titled "Individual Motor Outcome Prediction in Preterm Children Using Neonatal Neuroimaging" to Peppar Cyr, MPhil at Washington University in St. Louis School of Medicine. In addition to the research project, this fellowship includes training in disability advocacy and curriculum development.