Disability Grant-Funded Projects
ACL awarded Grant: Partnering to Transform Health Outcomes with Persons with Intellectual Disabilities and Developmental Disabilities (PATH-PWIDD) program. Purpose: Strengthen Healthcare Workforce and Address Health Disparities among People with Intellectual and Developmental Disabilities. The core partners are:
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Rush University, College of Nursing (PI Sarah Ailey, PhD, RN, PHNA-BC, CNE, CDDN),
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St. John Fisher College, Golisano Institute for Developmental Disability Nursing (PI – Dianne Cooney-Miner, PhD, RN,CNS, FAAN);
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University of Illinois at Chicago, HealthMattersTM Program (PIs – Beth Marks, PhD, RN, FAAN and Jasmina Sisirak, PhD, MPH);
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University of Minnesota, Institute on Community Integration (PIs – Brian Abery, PhD and Renáta Tichá, PhD); and,
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Villanova University, M. Louise Fitzpatrick College of Nursing (PI – Suzanne Smeltzer, EdD, RN, ANEF, FAAN).
The PATH-PWIDD project is guided by the Collective Impact Model for social change. A national, cross-sector consortium of advocates, healthcare providers, community-based workers, leaders in health care workforce education, policy experts, and academics comprise 3 PATH-PWIDD Consortium Action Networks (CANs). The CANs advise on the following areas for the PATH-PWIDD grant: 1) Measurement, Evaluation, and Outcomes, 2) Communication, and 3) Education, Practice, and Policy.
Below are presentations from CAN members on interprofessional education and training of healthcare workers in caring for persons with intellectual and developmental disabilities. (See links below for recorded presentations).
Dr. Jennifer Mendez presented on the Interprofessional Team Visit Program at Wayne State University School of Medicine, in a presentation titled, “Utilizing an Interprofessional Value Scale to Optimize Team Assessment
Kim Bullock, MD, Director, Department of Family Medicine Community Health Division (CHD) and two of her student leaders, John DiBello and Meghan Chin, presented an overview of Community-Based Learning at Georgetown University School of Medicine and integrating its principles into student-focused, community-based participatory research (CBPR), including collaboration with the IDD community in DC.
Dr. Blase Brown presented on Interprofessional Education at the University of Illinois at Chicago School of Dentistry. and power point
Janice Odiaga, DNP, CPNP-PC and her team from the Office of Interprofessional Education at Rush University presented on their Interprofessional Patient Centered Teams curriculum and evaluation tools.
Craig Escudé, MD, FAAFP FAADM presented on his Curriculum in IDD Healthcare.
NIH (NICHD) awarded a fellowship grant titled "Individual Motor Outcome Prediction in Preterm Children Using Neonatal Neuroimaging" to Peppar Cyr, MPhil at Washington University in St. Louis School of Medicine. In addition to the research project, this fellowship includes training in disability advocacy and curriculum development.