ADHCE.org Members Most Recent Publications & Policy Contributions

The Hastings Center & the ADHCE Members who helped coauthor this significant Issue Brief Anti-Ableist Medical Education: Meeting the Challenges

The following resources will: (1) help adult patients with developmental disabilities assert their right to medical self-determination, (2) help families effectively advocate for their loved ones, and (3) help health care providers fulfill their ethical and legal obligations to this patient population.

We commend ADHCE.org former president, Sarah Ailey PhD RN for her two recently published Op-Eds (1) Her latest Op-Ed published in Visible Magazine: HEALTHCARE BIAS IS LOWERING THE STANDARD OF CARE FOR PEOPLE WITH DISABILITIES DURING THE COVID CRISIS (2) -Are we Prepared to Provide Care to People with IDD  This op-ed was recently published in MEDPAGE Today

ADHCE Board Member, Peppar Cyr, MPhil recently published an article and her co-author Christina Su, Accessible Medical Education and TIC: Increasing Equitable Care for Disabled Patients

. HPHR. 2021;44.  It's a commentary article about disability and Trauma-Informed Care in medical education that Cyr mentored a medical student and writing this in collaboration.

ADHCE Vice President Carole Schwartz M.S., OTR co-authored two publications released Feb 11, 2022 by Archives of Physical Medicine and Rehabilitation. A Post-Acute Care Function Process Quality Measure for the Collection of Standardized Self-Care and Mobility Data: Development, Implementation, & Quality Measure Scores  Anne Deutsch, PhD, RN, CRRN , Lauren Palmer, PhD, Tara McMullen, PhD, Molly Vaughan, PhD, DPT, Carole Schwartz, MS, OTR, Alrick Edwards, MPH Inpatient Rehabilitation Facility Patients’ Functional Abilities and Validity Evaluation of the Standardized Self-Care and Mobility Data Elements Anne Deutsch, PhD, RN, CRRN, FACRM, Lauren Palmer, PhD, Molly Vaughan, PhD, DPT, Carole Schwartz, MS, OT/R

, Tara McMullen, PhD (link upon request)

ADHCE member Lisa I. Iezzoni, MD, MSc, professor at Harvard Medical School was cited as one of the mentors who provided guidance to Trisha Kaundinya in her solo authorship of the Health Affairs Feb. 14, 2022 publication: The Need for Disability Documentation in the Electronic Health Record