Publications Relevant to Disability in Health Care Education

(authored by one or more Alliance Members)

Bassell JL, Phan H, Leu R, Kronk R, Visootsak J. Sleep profiles in children with Down syndrome. Am J Med Genet A. 2015 Aug;167A(8):1830-5. doi: 10.1002/ajmg.a.37096. Epub 2015 Jun 23. PubMed PMID: 26105013; PubMed Central PMCID: PMC4515186.

Chan TE, Lockhart JS, Schreiber JB, Kronk R. Determining nurse practitioner core competencies using a Delphi approach. J Am Assoc Nurse Pract. 2020 Mar;32(3):200-217. doi: 10.1097/JXX.0000000000000384. PubMed PMID: 32132457.

Clements KM, Zhang J, Long-Bellil LM, Mitra M. Emergency department utilization during the first year of life among infants born to women at risk of disability. Disabil Health J. 2019 Aug 01; 100831. PMID: 31431409.
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Berry-Kravis E, Hessl D, Abbeduto L, Reiss AL, Beckel-Mitchener A, Urv TK. Outcome measures for clinical trials in fragile X syndrome. J Dev Behav Pediatr. 2013 Sep;34(7):508-22. doi: 10.1097/DBP.0b013e31829d1f20. PubMed PMID: 24042082; PubMed Central PMCID: PMC3784007.

Cook RS, Gillespie GL, Kronk R, Daugherty MC, Moody SM, Allen LJ, Shebesta KB, Falcone RA Jr. Effect of an educational intervention on nursing staff knowledge, confidence, and practice in the care of children with mild traumatic brain injury. J Neurosci Nurs. 2013 Apr;45(2):108-18. doi: 10.1097/JNN.0b013e318282906e. PubMed PMID: 23422697.

Hagerman RJ, Berry-Kravis E, Kaufmann WE, Ono MY, Tartaglia N, Lachiewicz A, Kronk R, Delahunty C, Hessl D, Visootsak J, Picker J, Gane L, Tranfaglia M. Advances in the treatment of fragile X syndrome. Pediatrics. 2009 Jan;123(1):378-90. doi: 10.1542/peds.2008-0317. Review. PubMed PMID: 19117905; PubMed Central PMCID: PMC2888470.

Henry AD, Long-Bellil L, Zhang J, Himmelstein J. Unmet need for disability-related health care services and employment status among adults with disabilities in the Massachusetts Medicaid program. Disabil Health J. 2011 Oct; 4(4):209-18. PMID: 22014668.
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Kronk R, Bishop EE, Raspa M, Bickel JO, Mandel DA, Bailey DB Jr. Prevalence, nature, and correlates of sleep problems among children with fragile X syndrome based on a large scale parent survey. Sleep. 2010 May;33(5):679-87. doi: 10.1093/sleep/33.5.679. PubMed PMID: 20469810; PubMed Central PMCID: PMC2864883.

Kronk R, Colbert AM, Smeltzer SC, Blunt E. Development of Prelicensure Nursing Competencies in Caring for People With Disabilities Through Delphi Methodology. Nurse Educ. 2020 May/Jun;45(3):E21-E25. doi: 10.1097/NNE.0000000000000712. PubMed PMID: 31219959.

Johnson CR, Turner KS, Foldes E, Brooks MM, Kronk R, Wiggs L. Behavioral parent training to address sleep disturbances in young children with autism spectrum disorder: a pilot trial. Sleep Med. 2013 Oct;14(10):995-1004. doi: 10.1016/j.sleep.2013.05.013. Epub 2013 Aug 27. PubMed PMID: 23993773; PubMed Central PMCID: PMC3775974.

Kronk R, Dahl R, Noll R. Caregiver reports of sleep problems on a convenience sample of children with fragile X syndrome. Am J Intellect Dev Disabil. 2009 Nov;114(6):383-92. doi: 10.1352/1944-7588-114.6.383. PubMed PMID: 19792059

Kronk RA, Ogonowski JA, Rice CN, Feldman HM. Reliability in assigning ICF codes to children with special health care needs using a developmentally structured interview. Disabil Rehabil. 2005 Sep 2;27(17):977-83. doi: 10.1080/09638280500052849. PubMed PMID: 16096251.

Iezzoni LI, Long-Bellil LM. Training physicians about caring for persons with disabilities: "Nothing about us without us!". Disabil Health J. 2012 Jul; 5(3):136-9. PMID: 22726853.
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Long-Bellil L, Mitra M, Iezzoni LI, Smeltzer SC, Smith L. The Impact of Physical Disability on Pregnancy and Childbirth. J Womens Health (Larchmt). 2017 Jun 29. PMID: 28661774.
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Long-Bellil L, Mitra M, Iezzoni LI, Smeltzer SC, Smith LD. Experiences and unmet needs of women with physical disabilities for pain relief during labor and delivery. Disabil Health J. 2017 Apr 06. PMID: 28428112.
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Long-Bellil LM, O'Connor DM, Robey KL, Hahn JE, Minihan PM, Graham CL, Smeltzer SC. Commentary: defining disability in health care education. Acad Med. 2011 Sep; 86(9):1066-8. PMID: 21865901.
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Long-Bellil LM, Robey KL, Graham CL, Minihan PM, Smeltzer SC, Kahn P. Teaching medical students about disability: the use of standardized patients. Acad Med. 2011 Sep; 86(9):1163-70. PMID: 21785304.

Minihan PM, Robey KL, Long-Bellil LM, Graham CL, Hahn JE, Woodard L, Eddey GE. Desired educational outcomes of disability-related training for the generalist physician: knowledge, attitudes, and skills. Acad Med. 2011 Sep; 86(9):1171-8. PMID: 21785313.
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Mitra M, Akobirshoev I, Moring NS, Long-Bellil L, Smeltzer SC, Smith LD, Iezzoni LI. Access to and Satisfaction with Prenatal Care Among Pregnant Women with Physical Disabilities: Findings from a National Survey. J Womens Health (Larchmt). 2017 12; 26(12):1356-1363. PMID: 28832265.
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Mitra M, Bogen K, Long-Bellil LM, Heaphy D. Unmet needs for home and community-based services among persons with disabilities in Massachusetts. Disabil Health J. 2011 Oct; 4(4):219-28. PMID: 22014669.
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Mitra M, Smith LD, Smeltzer SC, Long-Bellil LM, Sammet Moring N, Iezzoni LI. Barriers to providing maternity care to women with physical disabilities: Perspectives from health care practitioners. Disabil Health J. 2017 Jan 03. PMID: 28089188.
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Mitra M, Long-Bellil LM, Iezzoni LI, Smeltzer SC, Smith LD. Pregnancy among women with physical disabilities: Unmet needs and recommendations on navigating pregnancy. Disabil Health J. 2016 Jul; 9(3):457-63. PMID: 26847669.
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Mitra M, Clements KM, Zhang J, Iezzoni LI, Smeltzer SC, Long-Bellil LM. Maternal Characteristics, Pregnancy Complications, and Adverse Birth Outcomes Among Women With Disabilities. Med Care. 2015 Dec; 53(12):1027-32. PMID: 26492209.
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Mitra M, Long-Bellil LM, Smeltzer SC, Iezzoni LI. A perinatal health framework for women with physical disabilities. Disabil Health J. 2015 Oct; 8(4):499-506. PMID: 26189010.
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Mitra M, Iezzoni LI, Zhang J, Long-Bellil LM, Smeltzer SC, Barton BA. Prevalence and risk factors for postpartum depression symptoms among women with disabilities. Matern Child Health J. 2015 Feb; 19(2):362-72. PMID: 24889114.
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Ogonowski J, Kronk R, Rice C, Feldman H. Inter-rater reliability in assigning ICF codes to children with disabilities. Disabil Rehabil. 2004 Mar 18;26(6):353-61. doi: 10.1080/09638280410001658658. PubMed PMID: 15204487.

Powell RM, Mitra M, Smeltzer SC, Long-Bellil LM, Smith LD, Rosenthal E, Iezzoni LI. Breastfeeding Among Women With Physical Disabilities in the United States. J Hum Lact. 2018 May; 34(2):253-261. PMID: 29166569.
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Powell RM, Mitra M, Smeltzer SC, Long-Bellil LM, Smith LD, Rosenthal E, Iezzoni LI. Adaptive parenting strategies used by mothers with physical disabilities caring for infants and toddlers. Health Soc Care Community. 2018 Dec 16. PMID: 30556199.
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Powell RM, Mitra M, Smeltzer SC, Long-Bellil LM, Smith LD, Iezzoni LI. Family Attitudes and Reactions toward Pregnancy among Women with Physical Disabilities. Womens Health Issues. 2017 Feb 16. PMID: 28215842.
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Robey KL, Minihan PM, Long-Bellil LM, Hahn JE, Reiss JG, Eddey GE. Teaching health care students about disability within a cultural competency context. Disabil Health J. 2013 Oct; 6(4):271-9. PMID: 24060249.
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Smeltzer SC, Mitra M, Iezzoni LI, Long-Bellil L, Smith LD. Perinatal experiences of women with physical disabilities and their recommendations for clinicians. J Obstet Gynecol Neonatal Nurs. 2016;45:781–789. doi: 10.1016/j.jogn.2016.07.007. [PMC free article] [PubMed] [CrossRef] [Google Scholar]

Smeltzer SC, Mitra M, Long-Bellil L, Iezzoni LI, Smith LD. Obstetric clinicians' experiences and educational preparation for caring for pregnant women with physical disabilities: A qualitative study. Disabil Health J. 2018 Jan; 11(1):8-13. PMID: 28784583.
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Smeltzer SC, Mitra M, Iezzoni LI, Long-Bellil L, Smith LD. Perinatal Experiences of Women With Physical Disabilities and Their Recommendations for Clinicians. J Obstet Gynecol Neonatal Nurs. 2016 Nov - Dec; 45(6):781-789. PMID: 27619410.
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