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The Alliance held their annual meeting on the Rush University Campus in Chicago, Illinois. on March 25, 2017, following a two-day conference sponsored by Rush University in collaboration with University of Illinois at Chicago’s Department of Disability and Human Development. Sarah H. Ailey, Vice-President of the Alliance, was the principal investigator for Healthcare conference and many alliance members actively participated in the two-day conference. “Partnering to Transform Healthcare with People with Disabilities (PATH-PWD) – Improving Acute, Primary and Transitional Health care with People with Disabilities”. The purpose of the conference was: 1) to bring together key stakeholders in health care delivery with adults with disabilities, including researchers, providers, consumer advocates, policy makers, and insurers in order to reach consensus and provide recommendations on best practices and policies in primary, acute, and transitional health care with people with disabilities; 2) To disseminate synthesize recommendations on best practices and policies for acute, primary and transitional health care based on conference proceedings. The Alliance made commitments to support the conference goals including building consensus for the proposed professional competencies for all healthcare professionals; and a repository of curriculum materials and resources.
Alliance monthly membership calls run from 11:30 a-12:30 p EST the first Thursday of every month. Please email firstname.lastname@example.org with questions.
Two Alliance members, Dr. Gary Eddey and Dr. Ken Robey, along with other staff at the Matheny Medical and Educational Center and partnering acute care hospitals, have been working to improve the health care transition into and out of the acute care hospital for adults with developmental disabilities and medical complexity. Their recent project, funded by the Robert Wood Johnson Foundation, involves a transition nursing program to ensure that the individual’s chronic as well as acute care needs are met. Beyond care coordination, the transition nurse’s role is largely one of educator, preparing acute care staff to serve this unfamiliar and challenging patient population.
For more information, please see: http://www.nj.com/news/index.ssf/2013/11/methany_pilot_program_keeps_vulnerable_residents_out_of_the_hospital.html
A paper resulting from collaboration among a number of Alliance members has been published in Disability and Health Journal.
Congratulations to all ADHCE members involved!
- Robey, K.L., Minihan, P.M., Long-Bellil, L.M., Hahn, J.E., Reiss, J.G. & Eddey, G.E. (2013). Teaching health care students about disability within a cultural competency context. Disability and Health Journal, 6,271-279.